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Title:
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SHARING IS CARING:
DESIGNING A VALUE-SENSITIVE MHEALTH
PLATFORM FOR SHARING TYPE 1 DIABETES
MANAGEMENT WITHIN FAMILIES |
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Author(s):
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Elettra Oleari, Clara Pozzi, Francesco Sardu, Francesca Sacchitelli, Virginia Sanchini and Alberto Sanna |
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ISBN:
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978-989-8533-89-0 |
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Editors:
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Mário Macedo |
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Year:
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2019 |
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Edition:
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Single |
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Keywords:
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Type 1 Diabetes, Children, Self-Management, mHealth, Focus Group, Role Playing |
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Type:
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Full Paper |
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First Page:
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143 |
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Last Page:
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150 |
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Language:
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English |
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Cover:
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Full Contents:
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click to dowload 
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Paper Abstract:
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Within a mobile-technology enhanced educational framework, this study investigates needs and expectations of children
(aged 8-14) with type 1 diabetes, and their parents, to define the functionalities of PAL Inform, a web-based monitoring
module. The aim is to design it as a tool for parents to be informed on the educational progresses, as well on
diabetes-related data, of their children without violating their values (privacy, trust, autonomy). Through a set of
co-design activities, carried out with 39 children and 45 parents, it was possible to define which kind of information
parents would monitor and children (especially pre-adolescents), in turn, would share, without compromising family
dynamics: i.e. glycaemic values and trends, insulin doses, carbohydrates intake, generic emotional status, educational
progresses on diabetes-related knowledge. Leveraging on these insights, a set of functional requirements was elicited for
the future monitoring module implementation. |
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